With under 50 days to go, Rare Disease Day preparations are fully underway and we are one step closer with the release of the official… Continue reading Rare Disease Day poster out now!

Yara is a currently a researcher specialising in rare diseases and one of the stars for the Rare Disease Day 2018 video. She first witnessed… Continue reading Meet Yara

Only 100 Days to Rare Disease Day 2018 Preparations have already begun for the 11th edition of Rare Disease Day! Rare Disease Day 2018, which… Continue reading 100 days to go!

There is so much to be said in the fight to increase rare disease research that the theme for Rare Disease Day 2018 is research,… Continue reading The theme for Rare Disease Day 2018 is…

Today is #RareDiseaseDay 2017! Today, with events taking place in over 90 countries all around the world, we hope to raise more awareness than ever… Continue reading Today is Rare Disease Day 2017!

The Rare Disease Day 2017 official video is OUT NOW! Share this video on social media and with your friends and family to help spread… Continue reading Rare Disease Day 2017 Video: OUT NOW

EURORDIS is very pleased to announce that Sean Hepburn Ferrer, the eldest son of the late actress and dedicated philanthropist, Audrey Hepburn, is Rare Disease Day… Continue reading Rare Disease Day 2017 Ambassador

Meet Mathieu, who features in the Rare Disease Day 2017 video alongside his mother, Stéphanie. Mathieu, who is 10 years old, lives with congenital myasthenic… Continue reading Meet Mathieu

Meet Océane, one of the stars in our Rare Disease Day 2017 video, who lives with pemphigus, a disease that affects the skin and mucous… Continue reading Meet Océane