News

Mon 01 February, 2016

Out now! The 2016 Rare Disease Day video!

We are delighted to share with you the 2016 Rare Disease Day video which you can watch here! We invite you to share it on social media and with your friends and family to help spread the word that 29 February 2016 is Rare Disease Day!

Together, if you Join us in making the voice of rare diseases heard, both on Rare Disease Day and throughout the year, we can collaborate to strengthen the Patient Voice around the world.

This video, which is being translated into over 20 languages, celebrates the special moments in the lives of people living with a rare disease. Everybody experiences those special moments with their relatives, children, friends and colleagues. These moments can be big or small, every personal moment is as important as another. For people living with or affected by a rare disease, the emotion during these moments can be very strong as they leave behind the challenges they face on a daily basis. On Rare Disease Day we want to celebrate everyone’s special moments—tell us your story!

A huge thank you goes out to all those who helped in the creation of this video. Special thanks to the star performer Elisa, who is living with Williams syndrome, and her parents Sergio and Catia. You can read more about Elisa, her family and their daily challenges as well as joyful moments in their lives here.

Thanks also to Enfin Bref Production, Publicis Life Brands International, Renaud Cohen and the Théâtre du Châtelet in Paris, who all made the production of the video possible.

The collaboration of all those involved in the video is symbolic of the unity and solidarity that families, professionals, policy makers, researchers and industry demonstrate with people living with a rare disease. Share the video to become part of the international campaign!

Get involved today! 

 

The video is now in in 34 languages:

العربية, български català中国的hrvatski, čeština, dansk, nederlands, English, suomalainen, français, ქართულიdeutsch, ελληνικάעבריתmagyarindonesia, italiano, 日本語, 한국어lietuvių македонски, norsk, فارسی ,polskieportuguês, român, русскийсрпскиslovaški, español, Türk, Український, tiếng việt

 If the video is not yet translated in your language, you can send us the translation at [email protected] and we will embed the text as subtitles in the video for you.

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