Rare disease day 2019 videos

Official video - Lorena's story

Watch and share Lorena's story of living with Phelan-McDermid syndrome

Official video - Karlo's story

Watch and share Karlo's story of living with neurofibromatosis type 1.

Official video - Filip's story

Watch and share Filip and Alina's story of living with achondroplasia.

Official #ShowYourRare video

Join the #ShowYourRare 2019 campaign! Watch the official Rare Disease Day 2019 #ShowYourRare video.

Watch the Rare Disease Day 2019 videos available in your language below:

shqiptar- العربية - български - Català - 罕见病日- hrvatski - čeština - dansk - Nederlands - English (subtitled) - suomalainen - français - galego - ქართული - deutsch - ελληνικά - עברית - magyar - indonesia - italiano - 日本語 - 한국어 - Lietuvių - македонски - norsk - فارسی - Polskie - português - român - русский - srpski - slovensky - español - svenska - Türk - Український - Tiếng Việt

The Rare Disease Day 2019 campaign puts rare disease patient stories in the spotlight. This year’s campaign brings together three testimonial videos that tell the stories of Filip, Karlo, and Lorena and their experience of daily life with a rare disease.

If the video is not yet translated in your language and you would like to volunteer to translate it, get in touch at [email protected].