Rare disease day 2019 videos

Karlo's story

Watch and share Karlo's story of living with neurofibromatosis type 1.

Filip's story

Watch and share Filip and Alina's story of living with achondroplasia.

#ShowYourRare video

Join the #ShowYourRare 2019 campaign!

Watch the Rare Disease Day 2019 videos available in your language below:

shqiptar- العربية - български - 罕见病日- hrvatski - čeština - dansk - Nederlands - English (subtitled) - suomalainen - français - galego - ქართული - deutsch - ελληνικά - magyar - עברית - indonesia - italiano - 日本語 - 한국어 - Lietuvių - македонски - norsk - فارسی - Polskie - português - român - русский - srpski - slovensky - español - svenska - Türk - Український - Tiếng Việt

The Rare Disease Day 2019 campaign puts rare disease patient stories in the spotlight. This year’s campaign brings together three testimonial videos that tell the stories of Filip, Karlo, and Lorena and their experience of daily life with a rare disease.

Coming soon - a new testimonial video featuring Lorena from Spain who lives with Phelan-McDermid syndrome will be released in February ahead of Rare Disease Day.

If the video is not yet translated in your language and you would like to volunteer to translate it, get in touch at [email protected].