Carnitine-acylcarnitine translocase deficiency (CACT)

Our son, Gage, was born on July 10th, 2008. Gage has been diagnosed with a rare genetic disorder called Carnitine-acylcarnitine translocase deficiency (CACT), which prevents… Continue reading Carnitine-acylcarnitine translocase deficiency (CACT)

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LEI … PSP Prima di conoscere Lei si vive nelle normali abitudini con normali equilibri con una normale serenità. Ora che si comincia a fare… Continue reading LEI…PSP

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The Name Of It All

I have had bad joints since I was born; when I was younger I was constantly complainging of my joints hurting and with sprains. Come… Continue reading The Name Of It All

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What I’ve Learned From Having a Child With a Rare Terminal Disease

Almost two years ago we sat in a neurologists office and were told our 2-year-old son had an incurable, untreatable, terminal brain disease. Vanishing White… Continue reading What I’ve Learned From Having a Child With a Rare Terminal Disease

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Mesothelioma the Asbestos Cancer

I’m just an ordinary woman who married at 18 and washed my husband’s clothes as he came home from work at the Chatham Dockyard as… Continue reading Mesothelioma the Asbestos Cancer

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The Narcoleptic Nurse

To say I had an interesting journey through nursing school would be an understatement. When I started college in 2009, I never expected that I… Continue reading The Narcoleptic Nurse

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Why Me Lord?

My name is Maria Teniente. At 58 years old, I was living my dream life. I was retired from education after 28 yrs of service… Continue reading Why Me Lord?

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Boy to a Disabled “young man”

People usually describe childhood as the most entertaing days of anyonne’s life….but it wasn’t really true for me. Born as a young ‘healthy’ boy,my parents… Continue reading Boy to a Disabled “young man”

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Vitiligo Patient Surgeo Bell

As a child, I always had a small white patch on the left side of my eye that I just assumed it was a birth… Continue reading Vitiligo Patient Surgeo Bell

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