TMAU for life

At almost 43 I have had TMAU since childhood though it was only diagnosed 3 or 4 years ago. It has destroyed every aspect of… Continue reading TMAU for life

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Keep Fighting

Hey! My name is Francisco, 20 yr. old male and I’ve been living with this disease or whatever it is since I was maybe about… Continue reading Keep Fighting

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Invisible Disease

At 16, I almost died due to hundreds of P.E.’s surrounding both my lungs & from a major DVT in my left leg. Three days… Continue reading Invisible Disease

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06.02.2015 Yes I am still alive ,today is my Birthday

Today is my 36th birthday. Three years ago, I was diagnosed with a rare disease – “Pulmonary Hypertension”. When this happened, I didn’t believe that… Continue reading 06.02.2015 Yes I am still alive ,today is my Birthday

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A girl living in a “cushie” world

In October 2008, I was diagnosed with Cushing’s Disease, a rarely diagnosed endocrine disorder involving a hormone-secreting tumor of the pituitary gland. I’d been sick… Continue reading A girl living in a “cushie” world

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Alone and depressed

I suffer from achalasia these past 5 years and it has stolen my life. I cant eat meals now only soft blended watery foods not… Continue reading Alone and depressed

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Line’s Dream

Hello My Name is Line I’m 8 years old and I have RTS (Rubinstein-Taybi Syndrome) . I was diagnosed with RTS when I was 4… Continue reading Line’s Dream

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Life can win

Life can win The disease came upon me quickly and unexpectedly. Like a storm with no warning. Within a month, after a cold, I started… Continue reading Life can win

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Thank GOD I’m NOT Alone.

In March 2009, I was diagnosed with F.A.P/Gardners Syndrome. On Sept 10, 2009, I had my entire colon removed along with the majority of my… Continue reading Thank GOD I’m NOT Alone.

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