My life with MWS

The story of Khloe

This is Khloe she was born with Mowat-Wilson syndrome, and life has not been easy, she was diagnosed at age 2 with epilepsy, as she had two very bad seizures and almost died, she is in the 3% that is smaller than other children her age. She is silly and happy, her immune system is on the lower side and she had to undergo open heart surgery and they had to repair a very big hole in her heart as well as her left pulmonary artery. She crawls and also has a wheelchair, she has few words her favourites are shark and blue (for blues clues.) and even though she has a lot of health issues she is the happiest girl I know.