The story of Nikki
Hi, I’m Nikki, and I’m from Melbourne Australia. I was born with a rare disease named, Alagille Syndrome. In my case, Alagille Syndrome affects my liver, heart, bones, eyes, ears, learning pace and more. So far, I’ve had a liver transplant, a hip replacement surgery, jaw surgery, and most recently, I found out that one of my eye is legally blind.
Besides the medical aspect, Alagille Syndrome has also affected me personally (in a deep rooted level). For example, I was bullied at school, I wanted to be normal (sick free) for years, I asked God why me… This year, I’ll be turning thirty, and while most 30 year olds are married, have kids, have a job/a career and so on, I’m not. I’m not your average young adult and I’m no ordinary girl. Instead, I am an extraordinary girl with a story to tell.