Mother of a little girl with MGS

The story of Karla

Hello! My name is Karla, I am the mother of Tabatha, who is 2 years old and was diagnosed with Morning Glory Syndrome (MGS).
The Neuro-ophthalmologist asked us for an MRI of her head, which will be repeated every year.
He has glasses and patch therapy every day.
We have investigated here where we live (Monterrey, Nuevo León Mexico) in associations to find out more people who have this syndrome but so far we have not found anyone who has it.
Our interest is really to find out about additional therapies that they have had, if they have evolved for the better and if they have had retinal detachment.
Thanks for the support.

sorry for the translation