Just a boy with a rare disease

The story of Logan

Hi my name is Logan. I am 11 years old turning 12 on April 24. I was diagnosed with Loeys-Dietz syndrome type two in October 2018. I am the only one in my family that has this. I never know what the next day will bring in regards to my discomfort. I am under the care of many good doctors and my mom makes sure that I keep up with my doctors appointments. What I hope is that everyone gets educated on this type of syndrome. I am very proud to be a LDS warrior and to able to be a part of rare disease day.