Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Russian Association of Rare Diseases

National Alliance
Irina Myasnikova

Russian Patients Association

National Alliance

Rutgers University

Educational institution

Rylan Chen

Country Organiser

SaCro Tales

Other
Deandrea Mills

Sagás e Fortkamp Law Office

Private company
Maria Eduarda Sagás

Sahabat Pierre Robin Sequence (PRS)

Other
Wynanda Bagiyo Saputri (Nanda)

Sahlgrenska University Hospital

Health Professional
Nuria Fluriach Dominguez

Saint Peter’s University Hospital – Dept. of Medical Genetics & Genomic Medicine

Health Professional
Department of Medical Genetics and Genomic Medicine
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