Our friends

Check out how these 1,400 amazing organisations are raising awareness!


Wolfram Syndrome UK

Patient Group
Tracy Lynch

WonderFIL smiles

Patient Group
Linda Røksund

Words Worth Repeating

Laura Camerona

World Without GNE Myopathy (WWGM)

Patient Group
Shubhraa Sinha

Worldwide Syringomyelia & Chiari TF

Patient Group
Beth Nguyen

Xenon Pharmaceuticals

Private company
Jodi Regts

XLH Australia

Patient Group
Sandy Bevc

X&Y Fertility

Health Professional
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