Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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The Australian Cystinosis Foundation

Private company
Jenna McKenzie

The Avalon Foundation

Other
Deborah Ayres

The Big Sunflower Project

Other
Toni Abram

The Champ foundation

Researchers

The Coalition of Rare Diseases – Israel

National Alliance
Orly Dror - Azuriel

The Dinosaur Trust

EURORDIS Member
Tanja Flintoff

The E.WE Foundation

Other
Sarita Edwards

The Ectodermal Dysplasia Society

Patient Group
Danielle Gue
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