Italy

National Alliance
UNIAMO - FEDERAZIONE ITALIANA MALATTIE RARE
UNIAMO - FEDERAZIONE ITALIANA MALATTIE RARE
2019 events in Italy
Italy

Rare Disease Day in Italy

Italy joined Rare Disease Day for the first edition in 2008. In 2017, over 170 celebrations spread out over 50 different towns and cities with highlights including a dance display in Milan, a workshop in Rome, a conference in Siena and a charity run in Ostuni.

In 2018, there was also a huge variety of events across Italy to celebrate the day. One fundraising event included sports as varied as mountain biking, running and skating. People also got involved in flash mobs across Italy. Food unsurprisingly played a role in the day with a group of chefs coming together to produce dishes made from rare ingredients in recognition of Rare Disease Day. Other entertainment to celebrate Rare Disease Day included a film showing, a magic show, a jazz event and an evening of dancing, theatre and music. On a more serious note there were also conferences and lectures for example, on the theme of inclusion and 2018’s theme research.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]

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