Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2020 events
Tell your story!
Living with Bile Acid Malabsorption
Debbie - United Kingdom
Disorder of bile acid synthesis, with cholestasis and malabsorption
In 2006 I had my gallbladder removed. Little did I know of the consequence. The Gallstones went and for ten years my IBS seemed to improve. However, nothing could prepare me for the next chapter of my
My life matters too
Brittney - United States
Ehlers-Danlos syndrome type 4
Rare disease day 2020 has taken on a whole new meaning to me after my one rare diease tried to take my life away from me multiple times in 2019. My names Brittney and I live daily with not 1 but 2 diseases
Living with Pompe
Heather - United States
Pompe disease, late onset
I was diagnosed with Pompe Disease in July 10th 2015. I know something was wrong with me but mostly assumed that I was getting old and needed to exercise more. I began having major symptoms about 5 years