In light of Rare Disease Month, I wanted to share my story with many of you that do not know it. I was diagnosed in… Continue reading Dupytren’s/Ledderhose Disease
Results for "light up for rare"
We found 347 results for your search.
We are delighted to share with you the 2016 Rare Disease Day video which you can watch here! We invite you to share it on social… Continue reading Out now! The 2016 Rare Disease Day video!
My case started 11 years ago when I felt very ill and started having muscle and joint problems and for years I was told I… Continue reading It’s a rare one
29 February 2016 is Rare Disease Day! Read more about this year’s Theme and Slogan Theme: Patient Voice Slogan: Join us in making the voice… Continue reading The Rare Disease Day 2016 theme and slogan: Patient Voice—Join us in making the voice of rare diseases heard
Bring People Living with a Rare Disease out of the Shadows and into the Spotlight: Watch and Share the Official Rare Disease Day 2015 Video!… Continue reading The Official Rare Disease Day 2015 Video is Out!
Before February 2013, Sam was a normal, healthy kid. He was a little clumsy, but nothing that we were concerned about. One day in February,… Continue reading Sam vs VWM: Living with a rare, terminal disease
EURORDIS is delighted to announce the Rare Disease Day 2015 Ambassador: Sean Hepburn Ferrer. Born in Lucerne, Switzerland, Sean Hepburn Ferrer is the eldest son… Continue reading Meet the Rare Disease Day 2015 Ambassador: Sean Hepburn Ferrer
Do you know the difference between equity and equality? Equality means promoting fairness by treating everyone equally regardless of need, whereas equity means promoting fairness… Continue reading Equity toolkit
I still remember the day I was diagnosed with Gaucher disease like it was yesterday. The doctor’s words were a shock, like a cold splash… Continue reading A Story Of Overcoming