Rare disease day 2012

Event Summary

The fourth year of Rare Disease Day, like the first, fell on the special day of 29th February. 63 countries were strong together in celebrating Rare Disease Day, with new additions such as Russia, Chile and Pakistan joining the campaign.

Brussels Event

EURORDIS once again used the opportunity to host a European event which boasted some 120 participants with key note speakers including the First Lady of Georgia and many high profile stakeholders in the Rare Disease Community, all uniting to discuss “Rare Diseases: a model of EU solidarity”.

Social Media Highlight

The new feature of the official Rare Disease Day 2012 video, translated into 12 languages, helped capture the attention of over 100,000 people worldwide on YouTube, where it was voted first in the NGO category, and it received national television coverage in Italy, Portugal and Ireland.

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