News

Sat 29 February, 2020

Today is Rare Disease Day 2020

Rare Disease Day is today, 29 February as it is a leap year. The rarest day of the year dedicated to raising awareness for people living with a rare disease. 

The rare disease community and its supporters come together today to share the message: Rare is many. Rare is strong. Rare is proud!

We call for more equitable access to social opportunity, treatment and care for the 300 million people living with a rare disease and their families around the world.

Thousands of events including family fun days, sporting events, fundraisers, scientific conferences, art exhibitions, policy events and much more are taking place today across the globe in over 100 countries! Take a look at the interactive world map of Rare Disease Day events.

Join in the action on social media by using #RareDiseaseDay to add your voice to the campaign! We’ll be sharing exciting updates as events unfold across the globe so stay tuned to Rare Disease Day Facebook, Twitter and Instagram.

Show your support for people living with a rare disease by using the downloadable campaign visuals and sharing them with your family, friends and network.

We want to hear about your participation in the campaign!

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