Williams Syndrome

The story of Dylan

After a heart murmur discovered shortly following birth and an oral aversion that led to an NG tube at 4 months old, Dylan was finally diagnosed with Williams syndrome at 6 months old. 

Dylan currently receives an hour of OT, PT, and ST each week. He is followed by GI, cardiology, and metabolism. He meets milestones in his own time and is wildly stubborn. He is also the sweetest child with the most contagious smile. He loves animals, especially cows and The Wiggles. He is his older brother’s biggest fan and enjoys baths, walks in the stroller, and watching soccer with his daddy. He is our perfect little guy and we couldn’t imagine life without him! 

 

*Find others with Williams syndrome on RareConnect, the online platform for people affected by rare diseases