Stiff persons syndrome warrier

The story of Kelly

Sps is a one and a million. Disease worldwide. It caused by a gad 65 protien in your body that attacks your muscles. Symptoms are fallind ,your muscles tightning up ad hard as a rock spasms that can break bones. Its an autoimmune disease. Its also called tin man syndrome because you fall without warning. It is so rare most doctors dont know what it is. I am on over 30 pills a day just to prevent spasms that has ladted over 7 hrs. Not many treatment i have to get body transfusin weekly need a walker to get around and need financial assistance for a service dog vi am only 46 yrs old and can barely take care of my family lost my petsitting business and am in extreme pain 24 hrs a day. Insurance companies fight you to cover treatment and spend hundreds of dollers monthly for meds and been in the hospital every couple of weeks. It is torchure and there is no cure it only progresses to the point of being bedridden. I pray thete will be more reserch on treatments for this disease. Please pray for me. Kelly lewicki