The story of Katie
Hi im Katie, 27yo & i am 1 in 100,000 with PNE. I was recently diagnosed with PNE (Pudendal Nerve Entrapment) which built up weeks after following the birth of my 2nd child. It generally takes 3-6 years to be diagnosed due to the lack of knowledge / medical research around this condition but i however sought diagnosis & early intervention within a couple of months with the use of my orthopaedic nursing knowledge on nerve damage & my stubborness to not give up & find what was causing my neuropathic pain in my coccyx/glutes/legs & pelvic region. Neuralgia of any kind can be very debilitating and also invisible in the public eye.. There is very limited information & support in terms of duration of healing & ultimately a return to an everyday normal life again for PNE patients. Intensive Physiotherapy alongside medication and lifestyle changes (less sitting/sitting aids etc )seem to be the one key factor to follow in this pain syndrome for overtime reduction in pain & symptoms. PNE is typically a clinical diagnosis of elimination & does not always show up on medical imaging especially if the pudendal nerve has only been irritated & not a full entrapment is present. I am living proof you can be the healthiest / fittest version of yourself & still a health condition can choose you. With faith & resilience i will battle this & regain some of my old lifestyle again for the sake of my beautiful family of boys. Don’t give up! Theres always a way!