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Tinman family

19 years ago my firstborn son was born. The Dr heard a murmur so we saw a cardigogist and discovered he had a hole in… Continue reading Tinman family

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Isabella Faith

Hello, my name is Krystal and i have a 2 1/2 year old daughter name Isabella Faith. Isabella was born with Mckusic Kaufman Syndrome and… Continue reading Isabella Faith

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FEARLESS!

April 8th, 2011 began my journey of going blind. Out of the blue that day at work, I felt off-balance and my eyes felt weird.… Continue reading FEARLESS!

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Life with Lymphedema

I was 13 years old the first time I felt the onset of lymphedema. At the time, I had no idea what lymphedema was, and… Continue reading Life with Lymphedema

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Combined Cobalamin Defect

I was Diagnosed with Combined Cobalamin Defect when I was 8 years old and have been a Non Paid Patient Human Research Subject for Children’s… Continue reading Combined Cobalamin Defect

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Living with a rare disease

Coming from a family of six siblings, we have three rare diseases and I am the one blessed with all of them. fortunately there are… Continue reading Living with a rare disease

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HypoGal My Story With Sheehan’s Syndrome, Relapsing Polychondritis

HypoGal Shares Information about Disability Insurance, Sheehan’s Syndrome and Relapsing Polychondritis (R.P.) HypoGal, My Story My Story; most of my life I have never considered… Continue reading HypoGal My Story With Sheehan’s Syndrome, Relapsing Polychondritis

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My Story with Mesotehlioma

When I was younger, I would wear my dads work jacket around the house to do outside chores. My dad worked in construction and it… Continue reading My Story with Mesotehlioma

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Remaining Silent Does Not Raise Awareness

My story is about my hero my daughter Savanna Grace Thompson who is 3 , she is such a beautiful gift that was sent by… Continue reading Remaining Silent Does Not Raise Awareness

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