The story of Jenny
Easter Holidays 2019 my 8 yr old daughter woke up with puffy eyes. What at first we thought was allergies turned out to be the worst 4 days of our lives.
She was given anti allergy tablets but nothing worked. After a couple of days we noticed swelling in her legs now we know as odema.
She was immediately rushed to hospital with numerous blood tests and a diagnosis of nephrotic syndrome. 19 tablets was to be taken twice daily with blood tests monthly. At home we carried out daily urine checks to monitor how much protein was leaking from her kidneys.
She did it she took all 19 tablets twice daily up until may when she relapsed.Â
She was then transferred to a specialist hospital for a week of treatment including cannulars, blood tests and a kidney biopsy.
Tablets reduced to two twice daily
She has counted how many blood tests she had since the beginning, 35 blood tests is a lot for a little girl.
Fast forward to now almost easter 2 years later,she is in remission and we are hoping at our appointment next week her tablets can be stopped
However, once she stops taking the tablets we just have to wait and see and i pray that she doesnt relapse again.
She is an amazing little girl with an appetite to get better. She is an inspiration to me (mum) and her family and friends. We have the best support system in the world with the best specialist around.
Thank you for listening to Leahs StoryÂ
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