The story of Lexi

In September 2021 I was diagnosed with Idiopathic Intracranial Hypertension (IIH) This condition is also known as Pseudotumor cerebri and it’s a rare condition with an unknown cause that shows signs and symptoms of a brain tumor.

Even though IIH isn’t a brain tumor, it can still cause serious health problems.

This condition raises fluid pressure around the brain and I have found living with this condition is debilitating and has a profound effect on my quality of life.

IIH causes me to have disabling daily headaches and visual loss (that can be permanent) and with this condition, I have also been diagnosed with papilledema which is swelling of the optic nerve, which connects the eye and brain.