Idiopathic subglotic stenosis

The story of Leanne

Idiopathic subglotic stenosis is a rare disease. It is where your trachea shrinks and you can’t breathe. To fix this you have to have balloon dilations.

a lot of people have been misdiagnose as asthma as it mimics this. But ventolin and all the others don’t open us open again. I am in a Facebook group where there is approximately 2500 of us around the world that has this. 

They are still trying to find a cure and work out how this is caused.Â