The story of Emily
Emily was diagnosed with Nephrotic Syndrome and global developmental delay followed by genetic testing she was then diagnosed with TRIM8 related disorder. She has presented Epilepsy, developmental, intelectual, speech and physical delay and Focal segmental glomerulosclerosis.
She is so strong and every day spreading love and sweetness, even on the hardest day she has been resilient and brave. We are blessed with her life.