CVID and what it means for me.

The story of Roxsanne

I was diagnosed with CVID or Common Variable Imunodeficiency and Hypogammaglobulinaemia in 2011 and started treatment, which was white blood cell ifusions every three weeks through an IV in 2012. I was so ill before I started my infusions, I had repeated chest infections, I couldn’t put weight on, no matter how hard I tried and was so ill, that I could barely get out of bed, never mind find and maintain a job. When I finally got my diagnosis, it was such a relief to know that there was something tangible and that there was an option to get better. It hasn’t been the easiest road to travel, but I am learrning to live with my disease and the others that have appeared because of it.

I am rare and proud to be rare!

*Find others with Common variable immune deficiency (CVID) on RareConnect, the online platform for people affected by rare diseases.