Aoibhe O’Connor ML 2.5

The story of John

http://youtu.be/0tXApFUCq_Q
A snapshot of Aoibhe’s life since the last Rare Disease Day in 2014. On the 28th of February 2015, it is Rare Disease Day for Children and Adults living with Rare Diseases all across the world, Aoibhe has Mucolipdosis II/III or ML 2.5, it is a very rare genetic and life limiting disease, there is no cure or treatment. we think Aoibhe is the only person in Ireland with the disease. Please Share and life to create awareness for Rare Disease Day