Alaina’s Story

The story of Amanda

Our little girl is Alaina she is 21 months old and has a rare disease called Arthrogryposis. It effects less the 200,000 people in the US. She has it in her upper and lower part of her body! She also has a muscle and nerve disease that they can’t found out what disease it is yet. She has had lots of testing and goes to Children’s Hosptial of Philly. Alaina has done a lot of things the doctors where not sure if she would be able to do! She walks and also picks stuff up with her hands in hear own way! She is a very strong and amazing girl!