The story of Dave

They say I’m 1 in 4000 
and what I have is rare
No treatment or a cure as for this blindness I prepare 
But to look at me 
you’d think I see 
as well as most of you
For behind my eyes 
a condition lies
that most wont have a clue
Quite often I’m misunderstood 
At times I’ve been accused 
Those people just don’t get it
as my shins and soul get bruised 
The things they take for granted are for me a task to take
They say “I don’t look blind”
so then these symptoms must be fake
We need to raise awareness of these conditions that are rare
There’s more to disabilities 
than the sign with a wheelchair 
A need for education 
so no longer we’re held back 
by all those misconceptions 
life is rarely white or black
So if you’re like me 
and what you see 
is more a shade of grey
Show your support 
and change their thought 
for world rare disease day
Dave Steele (c)