About Yasmin elsamra foundation Debra Egypt
About Us
Yasmin El-Samra Charitable Foundation Debra-Egypt is the only Foundation in Egypt that serve, care and help Epidermolysis Bullosa (EB) patients since birth and all ages, all genders.
The foundation was founded by Mrs. Hanaa El-Sadat in 2014 under the umbrella of the Ministry of Social Affairs with a registration no. 6473.
It was named Yasmin Elsamra to the memory of my late daughter.
Www.yasminelsamrafoundation.com
We spread awareness about the disease in media, press, doctors, universities to let people know about this rare skin disease to deal easily with EB children everywhere.
We teach parents how to handle their EB children specially after birth.
We have Doctors specialist in all fields that know how to operate and deal with EB patients. They don’t take any fees while investigating each case.
We support EB families monthly with all medical supplies prescribed by doctors. (Range between L.E. 1,500.00 to L.E. 5,000.00)
We pay all fees for hand , dental and other surgeries required to EB patients. In addition to blood transfusions and physiotherapy treatment.
We teach nurses how to deal with EB patients when applying for an operation.
We represent Debra-Egypt, one of 50 countries globally at Debra-international one of the biggest Foundations serving EB patients. Www.debra-international.org
Mrs Hanaa El-Sadat is a member of the Executive Board Committee of Debra International from 2021 till 2024.
Also, a member at Epidermolysis Bullosa without Borders (EBWB) which is a key initiative of Debra International. Its mission is to help EB patients & families in countries where there is no Debra structure to support them & to assist new groups to form & develop.
We deal with the mind of EB children by teaching them drawing, crafts, dancing, singing, decoupage and reading books. They display their work in exhibitions to sell and earn money to feel self dependent and sence of community participation.
Also, we arrange outings and celebrate mother’s day to encourage and change the mood of EB patient and their families.
We are working on enrolling THE EPIDERMOLYSIS BULLOSA DISEASE under the 5% handicapped and with health insurance to make them feel they have the right to live with pride , hope and having a role in our society.
We hope for a CURE soon to alleviate the suffering of EB patients and their families.
EB PATIENTS NEED CARE, LOVE AND SUPPORT TO BE ABLE TO CONTINUE THEIR PAINFUL LIFE WITH A SMILE AND COMFORT.
Images
