Wiedemann-Steiner Syndrome Foundation

United States United States

About Wiedemann-Steiner Syndrome Foundation

The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by WSS. We have a growing global community of 1,000+ people diagnosed with WSS, caused by mutations to the KMT2A gene. We are focused on delivering programming to increase awareness of WSS and supporting research to understand the WSS characteristics and develop meaningful therapeutic and medical treatments.

In celebration of Rare Disease Day 2022, we will be publishing stories throughout the month of February featuring our WSS warriors and families, and in their own words. These stories can be on our website at www.wssfoundation.org and on our social media channels (Facebook, Twitter, Instagram, YouTube). Find us online with hashtags #wiedemannsteinersyndrome #WSSwarriors #wssfoundation and #rarediseaseday (of course!)


Partner details

Christina O'Keeffe
United States
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