About Superficial Siderosis Research Alliance
Because of financial and administrative barriers, it is increasingly difficult for physicians, clinicians, and researchers to pursue much-needed life-changing discoveries. This is especially true regarding a disorder as rare as superficial siderosis. The SSRA was founded by patients and caregivers who came together during Rare Disease Week activities in Washington, D.C. We continue to support all Rare Disease Day events in the U.S. and the U.K.
The Superficial Siderosis Research Alliance’s mission is simple.
To seek, raise, and provide funding to support medical research to benefit the rare disease community affected by the neurodegenerative disease superficial siderosis and the identified symptoms of this disease, such as ataxia, hearing loss, and myelopathy.
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