About Pulse Infoframe
Pulse Infoframe, is a real-world evidence generation company that helps simplify and accelerate real-world data collection in the form of patient registries or natural history studies. The regulatory grade data generated from the platform is used to compliment clinical trials too. We have been partnering with Rare Disease Advocates to build registries and studies for a variety of different rare diseases including but not limited to CDKL5, Alport Syndrome, BHD, Poland Syndrome, Timothy Syndrome, Ataxia and more. We have developed a series of 3 videos highlighting the rare disease advocates we work with to go out next week. We have included your logo and based the color pallet on yours as well to ensure we help spread the news of your awareness day. We would be happy for you to share them however you see fit. We plan to be sharing them on all of our social channels next Monday, Wednesday and Friday. Let me know if you need anything more on our end and I am looking forward to hearing back from you.