Very little is known about Poland Syndrome and it’s hard to find the right people in the know in the medical community.
At PIP-UK we want to change this situation and make sure people get access to the right information for them, at the right time!
Our blog has videos on all sorts of things like how to tie shoelaces. There are stories which demonstrate that Poland Syndrome should not hold you back from anything!
PIP-UK is working hard to improve the lives of people living with Poland Syndrome. We have worked with our members to update our aims for 2021 to reflect this and here’s what they came up with: