About Orphanet Germany
Orphanet is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases. Orphanet aims to provide high-quality information on rare diseases, and ensure equal access to knowledge for all stakeholders. Orphanet also maintains the Orphanet rare disease nomenclature (ORPHAnumber), essential in improving the visibility of rare diseases in health and research information systems.
Orphanet was established in France in 1997. The initiative became a European endeavour from 2000, supported by grants from the European Commission (EC), and has now grown to a Network of 37 countries across the globe. The German team is partner since 2001.
Over the past 20 years, Orphanet has become the reference source of information on rare diseases. Learn more : https://www.orpha.net/consor/cgi-bin/Education_AboutOrphanet.php?lng=EN