About Boston Rare Connections
For Rare Disease Day 2021, Boston Rare Connections is collaborating with the Chinese Organization for Rare Disorders to host “Fight for Those Living with Lesch-Nyhan Disease (LND)”, an international virtual meeting focused on conversations regarding living with Lesch-Nyhan Disease. The meeting will feature medical experts who will discuss treatment options and current resources related to LND, as well as presentations and stories from patients and their families living with LND.