About Association of Citizens for Rare Diseases “Life With Challenges”
Association of Citizens for Rare Diseases LIFE WITH CHALLENGES – Bitola, in 2013 focused on activities of strengthening of the association, growth and development and raising public awareness in the field of rare diseases. All the activities are directed towards finding long-term solutions needed for the patients to have better quality of life. Part of our activities are also in support of other associations, cooperation with other associations, support of patients and families, sharing information and best practices and networking, all focused on improving management of rare diseases and different complications. Life with challenges, won the PAL award from Genzyme, Sanofi Company, which supported our activities in 2013.
We created a brochure with personal stories of patients and parents that face life with rare diseases.(download on our web page http://challenges.mk/wp-content/uploads/2013/04/Brochure.pdf).