Our friends

Check out how these 1,400 amazing organisations are raising awareness!


ACHSE e. V. Allianz Chronischer Seltener Erkrankungen

National Alliance
Bianca Paslak-Leptien

ALAN – Maladies Rares Luxembourg

National Alliance
Shirley Feider

Ali Kimara Rare Disease Foundation – AKRDF

National Alliance
sharifa Mbarak

All-Russian Society for Phenylketonuria

National Alliance
Matlyuba Khakimova

Alliance Maladies Rares

National Alliance
Anne-Sophie Blanchard


National Alliance
Yukiko Nishimura
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