About 酪宝宝的成长屋（酪氨酸血症）
这是一个酪氨酸血症患者组成的互助组织，我们建设了一个专门为酪氨酸血症患者提供信息的中文网站。网站定期会举行线上交流会，我们也使用英语帮助中外患者和医生交流。This is an organization formed by the families with tyrosinemia. We have built a Chinese website dedicated to providing information for patients and their families. The website regularly holds online meetings for everyone. Our organizers can also use English to support the communication between patients worldwide.