All Friends

226 Friends of rare disease day
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#youseeus
CONTACT: BTST
Others
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ADCY5.org
CONTACT: Steve Grossman
Other Patient Groups
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Advanced Medical Projects
CONTACT: Amber Kelly Bayly
Researchers
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Advocacy and Community Engagement Manager
CONTACT: Tenasha Williams
Other Patient Groups
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AFAG - Associação dos Famíliares, Amigos e Portadores de Doenças Graves.
CONTACT: Maria Cecília Oliveira
Other Patient Groups
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AFIF SSR/PAG
CONTACT: Bénédicte Perrotin
Other Patient Groups
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AFMAH
CONTACT: Carole NOVAT
Other Patient Groups
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Agility Clinical
CONTACT: Karen Keeley
Others
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ahaweb.am
CONTACT: Yervand
EURORDIS Members
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AIRSS (Association pour l'Information et la Recherche sur le Syndrome SAPHO)
CONTACT: Nathalie DE BENEDITTIS
EURORDIS Members
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News
Today is Rare Disease Day 2017!
Today is Rare Disease Day 2017!
Today is #RareDiseaseDay 2017! Today, with events taking place in over 90 countries all around the world, we hope to raise more awareness than ever for rare diseases!  With the theme of research, and...
27 Feb 2017
Meet Geoffray
Meet Geoffray
Geoffray and his sister (who is 8 years older than he is) have suffered from poor sight since birth, without a precise diagnosis. Geoffray had to wait until the age of 13, in 1996, before meeting Dr H...
25 Jan 2017
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