Description
Part Craft Class, Part Storytelling, Wear Your Rare is a virtual meeting for those diagnosed with AVM or any rare disease. Hosted by TAAF Awareness Ambassador Erica Carnegie and Executive Director, Dina Chon, all ages are welcome. We will discover fun ways to create unique apparel to wear on Rare Disease Day, learn tips and tricks for telling your story via social media, and hear from those within the greater rare disease community. PLUS, interested participants can have their story shared by The Aneurysm and AVM (TAAF) Foundation on Rare Disease Day. Registration is required. https://bit.ly/WearYourRare
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