06 Jan 2021
Wed 06 January, 2021
To :
Sun 28 February, 2021
United Kingdom
2020 events in United Kingdom
Video of people saying
24 Oct 2018 - 24 Oct 2019 Wordwide
Rare Disease UK is hosting
10 Feb 2020 London
Findacure's Drug Repurposing
24 Feb 2020 London
The Office for Rare Conditions
24 Feb 2020 - 28 Feb 2020 Glasgow
Join Rare Disease UK for
25 Feb 2020 Cardiff
Royal Holloway celebrated
26 Feb 2020 Egham
This year for the worldwide
26 Feb 2020 London & Worldwide
Date: Wednesday 26 February
26 Feb 2020 London
Let's "Reframe Rare"! Come
28 Feb 2020 Belfast
Let's "Reframe Rare"! Come
28 Feb 2020 Belfast
Hands on activities from
28 Feb 2020 London
The Advocacy of Neuroacanthocytosis
29 Feb 2020 London
Please join us for a very
29 Feb 2020 London
Cambridge Rare Disease
29 Feb 2020 Cambridge
29 Feb 2020 Manchester
Genetics Matters is an
29 Feb 2020 Newcastle Upon Tyne
We hope you'll be able
29 Feb 2020 Twitter
Join Rare Disease UK for
04 Mar 2020 Edinburgh
We share our colours, our
03 Feb 2021 - 28 Feb 2021
World of Rare Disease Pop
09 Feb 2021 - 11 Feb 2021 Northern Ireland
Sheffield Autism Research
21 Feb 2021 - 28 Feb 2021 Sheffield
Virtual Parliamentary EventRare
24 Feb 2021 Online
24 Feb 2021 - 27 Mar 2021 Northern Ireland
On Friday 26 February 2021
26 Feb 2021
Join us for a Rare Disease
26 Feb 2021 Virtual
Thank you councillor Emlyn
28 Feb 2021 Carmarthenshire
We will light the top of
28 Feb 2021 London
Virtual Musical RariTea
28 Feb 2021 Northern Ireland
Northern Ireland Rare Disease
28 Feb 2021 Northern Ireland
The Adenomyosis Advice
28 Feb 2021 UK
The following locations/landmarks
28 Feb 2021
On Rare Disease Day join
28 Feb 2021 Virtual
To coincide with Rare Disease
28 Feb 2021
RARE CANCER – how rare
28 Feb 2021
What does RARE mean to
28 Feb 2021
Rare diseases are not as
28 Feb 2021
Our Rare AHC Event:A Virtual
28 Feb 2021 - 07 Mar 2021 Virtual All over...
We are excited to announce
01 Mar 2021 - 06 Mar 2021
On 2 March, people living
02 Mar 2021 Edinburgh
Coping Through Covid and
06 Mar 2021 LONDON
United Kingdom

7k run for 7000 Rare Diseases 06 January 2021 - 28 February 2021 Virtual, London, United Kingdom
Hosted by Partners4Access

They are a private company

The staff at Partners4Access are all running 7k for 7000 rare diseases worldwide. Currently over 95% of patients diagnosed with a rare disease have no access to treatment or curative therapies. In our current climate this is just not good enough. Please support us by not only donating, but also pledging to run, walk or crawl 7K on 28th February 2021. We would love to see your training videos and a video of you crossing the finish line under the hashtag #wearerunningforyou

Every penny donated will be going to Rare Disease UK to help raise awareness and raise money for this important charity and the great work they do to enable patients to access the treatments they so desperately need! With your donation, Genetic Alliance UK - Rare Disease UK can work to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions.

Keep an eye on our LinkedIn, Twitter and  Facebook page's for updates and some patient stories along the way. Thank you for taking the time to visit our JustGiving page. One step at a time, we can help to change the lives of people with rare diseases. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.


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