26 Feb 2020
Wed 26 February, 2020
London & Worldwide
2020 events in United Kingdom
Video of people saying
24 Oct 2018 - 24 Oct 2019 Wordwide
Rare Disease UK is hosting
10 Feb 2020 London
Findacure's Drug Repurposing
24 Feb 2020 London
The Office for Rare Conditions
24 Feb 2020 - 28 Feb 2020 Glasgow
Join Rare Disease UK for
25 Feb 2020 Cardiff
Royal Holloway celebrated
26 Feb 2020 Egham
This year for the worldwide
26 Feb 2020 London & Worldwide
Date: Wednesday 26 February
26 Feb 2020 London
Let's "Reframe Rare"! Come
28 Feb 2020 Belfast
Let's "Reframe Rare"! Come
28 Feb 2020 Belfast
Hands on activities from
28 Feb 2020 London
The Advocacy of Neuroacanthocytosis
29 Feb 2020 London
Please join us for a very
29 Feb 2020 London
Cambridge Rare Disease
29 Feb 2020 Cambridge
29 Feb 2020 Manchester
Genetics Matters is an
29 Feb 2020 Newcastle Upon Tyne
We hope you'll be able
29 Feb 2020 Twitter
Join Rare Disease UK for
04 Mar 2020 Edinburgh
We share our colours, our
03 Feb 2021 - 28 Feb 2021
World of Rare Disease Pop
09 Feb 2021 - 11 Feb 2021 Northern Ireland
Sheffield Autism Research
21 Feb 2021 - 28 Feb 2021 Sheffield
Virtual Parliamentary EventRare
24 Feb 2021 Online
24 Feb 2021 - 27 Mar 2021 Northern Ireland
On Friday 26 February 2021
26 Feb 2021
Join us for a Rare Disease
26 Feb 2021 Virtual
Thank you councillor Emlyn
28 Feb 2021 Carmarthenshire
We will light the top of
28 Feb 2021 London
Virtual Musical RariTea
28 Feb 2021 Northern Ireland
Northern Ireland Rare Disease
28 Feb 2021 Northern Ireland
The Adenomyosis Advice
28 Feb 2021 UK
The following locations/landmarks
28 Feb 2021
On Rare Disease Day join
28 Feb 2021 Virtual
To coincide with Rare Disease
28 Feb 2021
RARE CANCER – how rare
28 Feb 2021
What does RARE mean to
28 Feb 2021
Rare diseases are not as
28 Feb 2021
Our Rare AHC Event:A Virtual
28 Feb 2021 - 07 Mar 2021 Virtual All over...
We are excited to announce
01 Mar 2021 - 06 Mar 2021
On 2 March, people living
02 Mar 2021 Edinburgh
Coping Through Covid and
06 Mar 2021 LONDON
United Kingdom

Adenomyosis Awareness 2020 - Rare Disease Day 26 February 2020 UK HQ, London & Worldwide, Worldwide
Hosted by Adenomyosis Advice Association

This year for the worldwide Rare Disease Day 2020 the Adenomyosis Advice Association are keeping it simple.  We are asking all our association members, their friends and families to send us a photograph of a beautiful pink rose to pinpoint where they are in the world - to highlight where the adenomyosis awareness campaign has reached so far! We will also be taking part in the Rare Disease Day 2020 at the House of Commons Westminster, London to spread the adenomyosis awareness campaign even further!

For those of you new to the Association, since it was founded in 2011, the AAA has been a very important part of the Rare Disease campaign.  Our message is simple, diagnosing adenomymosis will prevent needless - endless pain and suffering for women of all ages and will save fertility, precious time and money - on average £50,000 per patient during their lifetime. 

During 2019 we have been working hard within business and medical forums here in the UK asking direct questions and shaping the way organisations think about women's health and how they include women in their processes, policies and regulations.  We have also been working with leading companies worldwide on a mission to make the technology to diagnose and treat adenomyosis available to all. 

With over 3 million people visiting the AAA main website via unique searches since 2011, our awareness campaign is reaching women living with this cruel and destructive disease.  Joining with all the other organisations on this special day across the world every year so far has highlighted adenomyosis and hundreds of other medical conditions which desperately need research and development globally and I am really looking forward to your support on this very special day!


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