The Road to EDIRA – Rare Disease Day Live Stream

28 February 2023
Worldwide

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Join us live on rare disease day!!! Find out more about the #EDIRA conference and how it can help Poland Syndrome and all rare diseases. RareQoL PIP UK and Dazzel4Rare are joining forces with 3 fabulous women. Kimberly Thomas-Tague Sam Fillingham Dr Sondra Butterworth PhD., MSc., PGCE., GMBPS. Community Health Psychologist. YOU CANNOT MISS THIS!!!

The #EDIRA conference is taking place on 12 May 2023 in #cardiff, and it will be the first conference to focus on inclusive research in the rare disease community. Tickets will go live on rare disease day and you are invited to join EDIRA founder Dr Sondra Butterworth as she takes us through what to expect at the conference and beyond in conversation with Sam Fillingham. Hosted by the fabulous Kimberly Thomas-Tague

Join us and find out how you can take part in raising your voice for inclusive research in rare diseases.

Register to join event on Zoom here:

https://us02web.zoom.us/webinar/register/WN_xONGHBSoSm6go5KCKWcPFg

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