Description
Raiden Science Foundation first ever virtual 5K event to raise awareness for UBA5 disease and celebrate Raiden’s 2nd birthday.
UBA5 disease is a ultra-rare progressive neurological disease that leave kids impacted severely disabled, cognitively impaired and seizures. There are only 30 cases in the world and death has been seen as early as infancy.
Funds raised from this will event be used for gene therapy research.
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