Description
On the occasion of World rare disease Day 2022, Dakshayani and Amaravati Health and Education is organizing a round table discussion to explore opportunities for inclusion of rare diseases not included in the National rare diseases policy, pathways for inclusion and access to treatments. The discussion is scheduled on 26th February, 04:00 pm to 5:30 pm IST. The theme is Rare Disease Policy- scope for inclusion and treatment of New Rare Diseases not included in National Rare Diseases Policy.
Click here to register: https://bit.ly/3umswS9
This round table discussion will emphasize the need and importance to explore the opportunities and challenges in rare dermatological diseases in India. There are a number of challenges that make the diagnosis and treatment of these rare diseases difficult. Despite various global initiatives to address the issues connected to rare diseases, more work needs to be done to address this overlooked disease area. Limited advanced clinical resources and far-to-reach, sporadically localized service facilities and the high cost of treatments have hampered the services’ reach to patients in low and middle-income countries like India. Disease categorization in the Rare Disease Policy often makes it difficult to categorize some of these diseases into straight-jacketed silos as there are varying stages of the disease.
Chair:
 Dr. Ramesh Bhat, Vice Dean, Father Muller Medical College, Kankanady, Mangalore, Director ILDS, Past president IADVL.
Speakers:
- Dr. Murlidhar Rajagopalan, Senior Consultant, and Head Dermatology. Apollo Hospitals, Chennai
- Dr. L. Swasticharan, Chief Medical Officer, Directorate General of Health Services, Ministry of Health and Family Welfare, New Delhi, India
- Dr. Madhulika Kabra, Professor, Division of Genetics, Department of Pediatrics, All India Institute of Medical Sciences, New Delhi
- Mr. Paul Albert Mendoza, Vice President of Psoriasis Philippines and President of Psoriasis Asia Pacific
- Dr. Ritu Jain, Board director at Global skin, International Alliance of Dermatology Patient Organizations, founder & President of Dystropic Epidermolysis Bullosa Research Association (DEBRA)
- Dr. Sunil Dogra ,Prof. at PGIMER Chandigarh
Images
