Description
Rapid-onset obesity with hypothalamic dysfunction, hypoventilation, and autonomic dysregulation (ROHHAD) is an ultra-rare disorder of respiratory control and autonomic nervous system (ANS) regulation, with endocrine system abnormalities. The ROHHAD International Consortium is a group of clinicians, scientists and stakeholders committed to advancing research and care of all ROHHAD warriors. In recognition of the patients and families we serve, ROHHAD IC is excited to be hosting their first ever Rare Disease Day meeting. This event will bring together physicians, scientists, and other stakeholders from around the world to discuss how we can collaborate to advance ROHHAD care and research. Though it is a scientific meeting, there will be something for everyone and we encourage patients, families, and friends of ROHHAD to attend.