Description
Program of RDD Tokyo
(Feb. 28, 13pm-19pm (JST))
13:00 Opening performance / Ayako Ozawa (Singing and storytelling by people with muscular dystrophy)
13:15 Keynote speech / Dr Keiiti Ozono (Osaka Univ.) Dr Chieko Kukinaka (Kumamoto Univ.) / Dr Tsutomu Chiba (Chair, National Committee on NANYBYO)
14:35 Kids Session /Â RAMU and YURI (Kids Planner)
14:55 Patients’ testimonial session / Dr. Shigehiro Namiki (Multiple sclerosis) / Mrs. Chie Hayashi (Spinocerebellar degeneration) / Mr. Koji Yoshida (Alagille syndrome) Mr. Koji Yoshida
16:15 Sponsor’s session / Takeda Pharmaceutical Company / Alexion Pharma, LLC
17:35 Message from the teacher of the in-hospital class / Dr. Masakazu Soejima (Showa Univ.)
17:55 Tokyo Tower RDD – Light-up Ceremony
18:02 Radio Talk / Talk with RDD community organizers and Tokyo Tower viewing / Haruka Ikezaki, Shiori Nagamori, and Yukiko Nishimura
18:35- Summary from RDD Japan Secretariat
18:45- Closing performance / Planetarium screening / Mariko Takahashi
Messages from three intellectuals after the event
Mrs. Yukiko Mori (Representative Director, JPA) / Dr. Yosuke Kita (Counsellor, Permanent Mission of Japan to the United Nations) / Dr. Kazuhiko Mori (Executive Director, JPMA)
Youtube:Â https://lnkd.in/gwNGiVC