Description
WEBINAR
Greeting Yasuko MASUDA（Hokkaido NANBYO regional center)
Part I Keynote Lecture
What is RDD?
Naoya MINAMI
Early Diagnosis of Rare Diseases: The Role of Newborn Mass Screening and the Undiagnosed Disease Initiative (IRUD)
Masayoshi NAGAO
Advances in the Treatment of Rare Diseases: The Emergence of Nucleic Acid Drugs
Yuka ISHIKAWA
Part II Panel Discussion
Facilitator; Masashi KIKUCHI
(1) Rare disease medicine and research; no longer “incurable”!
(2) Collaboration with Citizens
Regional Disparities
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