Description
Cambridge Rare Disease Network (CamRARE) invite you to join us for tea and cakes to celebrate this year’s Rare Disease Day. We’re delighted to hold this friends and families event at the wonderful Storey’s Field Centre.
WHO IS THE EVENT FOR?
Everyone! This public event is open to all – children, families, those affected by rare conditions and those working with them, students, company representatives, scientists, healthcare professionals, and friends of CamRARE. Everyone’s welcome!
WHAT’S ON?
There will be refreshments and cakes for sale. Gluten free and vegetarian diets are catered for.
Get stuck into sensory and craft activities, or join in accessible indoor games with John Willis from Power2Inspire. Make edible DNA models with jelly babies (you can eat them after!), or take part in our fun, rare quiz.
Visit the CamRARE stand and learn about our community work. Meet members of our Unique Feet group, apply for a rare bear if your child has a rare or undiagnosed condition and sign up for our pilot Rare Patient ‘”This is Me” passport trial.
HOW MUCH DOES IT COST?
Entry is free, although we encourage attendees to make an appropriate donation to support our Unique Feet community activities. Refreshments can be bought via card payment or cash.
GETTING THERE & PARKING
Cashless on-street visitor parking is available Saturday 10 am to 5 pm.
The first 60 minutes is free, then £1 for every 30 minutes thereafter up to the maximum stay. Drivers must still obtain a ticket or register their vehicle by phone for the first free 60 minutes.
A maximum stay of 2 hours applies in most spaces (4 hours for the spaces near Storey’s Field Centre and sports pitches).
No return within one hour in most spaces (no return within 2 hours where the maximum stay is 4 hours).
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